How to Manage Obstructive Hypertrophic Cardiomyopathy Symptoms

7 Ways to Manage Obstructive Hypertrophic Cardiomyopathy Symptoms

Living with any kind of heart-related disease can be worrisome, especially one with a range of symptoms, such as obstructive hypertrophic cardiomyopathy (HCM). This genetic condition causes a thickening of the heart muscle, which prevents or reduces blood flow.

The result? Chest pain, palpitations, fatigue, light-headedness, and shortness of breath, to name a few.

But there’s some good news, says Steve R. Ommen, MD, medical director of the Hypertrophic Cardiomyopathy Clinic at Mayo Clinic in Rochester, Minnesota, and the writing committee chair of the 2024 guidelines for managing HCM. “Most people with obstructive hypertrophic cardiomyopathy live a normal number of years and can engage in regular physical activities, too. And when symptoms do occur, several therapies can be highly effective.”

Adding these everyday strategies to your prescribed treatment plan may help reduce symptoms, prevent overexertion, and support overall heart health.

1. Log the Signs

To understand obstructive HCM and its impact on your daily life, it’s useful to know the most common symptoms you experience and potential triggers. “We always look to understand what types of physical activities a person can perform and which ones seem to make symptoms worse,” says Dr. Ommen. “Some people with obstructive hypertrophic cardiomyopathy keep a journal or log of their day-to-day symptom status, which can be helpful in the early stages when designing a treatment plan.” You might also consider wearing a heart rate monitor or smartwatch to help track overexertion.

2. Pace, Don’t Race

When you have symptomatic obstructive HCM, the signs can fluctuate day-to-day, says Ommen. But if you keep a log or journal, you should soon be able to identify what “bad days” look like. From there, you can take steps to modify tasks as needed. For example, it may help to sit on a stool at the kitchen counter for meal prep and divide daily chores into more manageable parts, such as dusting one room a day, rather than the whole house at once.

3. Focus on Sleep

Sleep is important for overall health and for your heart. “Both the quality and quantity of sleep is important to all of our systems, and this is why we screen people with obstructive HCM for sleep problems, such as poor sleep habits and sleep apnea,” says Ommen.

To make rest a priority, strive to tuck in and wake up at the same times each day, even on the weekends. Ommen also recommends avoiding stimulating environments an hour before bedtime (save that exciting crime drama for another time), as well as skipping alcohol and big meals. Also, consider nixing caffeine after the morning hours and sleeping in a cool, dark room free of electronics.

4. Eat Well and Stay Hydrated

There’s no specific diet for obstructive HCM, says Ommen, but simple changes in the way you eat, such as focusing on fruits, vegetables, and whole grains, can lower the risk of related health complications.

Taking steps to stay hydrated is just as important. “One of the most effective strategies for helping obstructive hypertrophic cardiomyopathy symptoms is to drink plenty of fluids throughout the day and increase that amount if there’s more physical activity or if you’re in hot, humid environments,” he says. Why? Heat and humidity can cause the heart to work harder by beating faster. And sweating may lead to dehydration, which makes it harder for your body to cool itself down and places added strain on the heart.

Ommen suggests putting a glass of water on the nightstand, so you start drinking the minute you wake up, and then hydrating regularly throughout the day.

5. Work In a Workout

Exercise is essential for heart health, but it’s important to check with your healthcare provider when creating a workout routine with obstructive HCM in mind.

 “Generally, you should focus on low- to moderate-intensity exercise, which includes both cardio and resistance training,” says Ommen. Some people may tolerate a higher-intensity workout. “This should be considered on a case-by-case basis, with a provider who is an expert in HCM,” he adds.

6. Reduce Stress

Living with a chronic condition such as obstructive HCM can be a stressful and isolating experience, so it’s important to consider your mental health, too.

Connecting with a patient peer group or others who understand life with obstructive HCM can make you feel less alone. Exercising and practicing mindfulness, which can include meditation, targeted breath work, and yoga, can help you stay grounded as you cope with the stress of the symptoms and physical limitations.

And don’t forget to keep your doctor informed, especially if you’re struggling with depression. A referral to a mental health professional may be the next step.

7. Follow the Treatment Plan

Sticking to the treatment plan prescribed to you is important when managing obstructive HCM and its symptoms. Be sure to attend follow-up appointments regularly for monitoring. Don’t be afraid to reach out to your doctor in between checkups, too, if you have any questions about how things are going.

The Takeaway

  • Making small changes to your lifestyle, such as staying hydrated, pacing tasks, and exercising more, can help improve obstructive HCM symptoms and promote overall wellness.
  • Reducing stress, focusing on sleep, and eating healthy can work in concert with the medicines your doctor prescribes.
  • Staying in touch with your doctor and discussing symptoms and your mood at each checkup will give you confidence as you live with obstructive HCM.