Things that once came easily, whether it’s a hobby or a household task, may now feel extremely challenging because of CIDP symptoms. Berko says that it’s natural to feel a sense of loss for the lifestyle you once had. Over time, it’s important to accept that your life looks different now and to avoid comparing yourself to others or to your life prediagnosis.
“Once you accept it, you can create a new way of making meaning in the world,” says Berko.
One helpful strategy is to focus on what you can do, even if it looks different than before. For example, you may still be able to walk your dog, just at a slower pace or with a few breaks along the way. Try to shift your focus to what you are capable of and notice the small positives that come from it — like spotting a community garden you hadn’t noticed before now that your walk is slow and intentional.
- Do light hand exercises to warm up your wrists before engaging in your hobby.
- Set small, achievable goals, like working on your creative project for 10 minutes a day.
- Use a hot or cool compress on swollen or painful joints before or while working on your hobby.
- Attach handles or grips to tools like paintbrushes, pens, and knitting needles.
- Ensure that you sit in a stable, comfortable posture.